This month we learn about
the first family psychoeducation project in Kansas.
Sue Ellen Jayne, consultant and trainer in the Office of Mental
Health Research & Training at KU's School of Social Welfare
facilitated the implementation and we hear from her about the
process and outcome of the training thus far.
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By
Sue Ellen Jayne, LMSW
Kansas Partnership of Families (KPF) is a
family-consumer-professional partnership that combines clear,
current information about mental illness with training in problem
solving, communication skills, coping skills, and the development of
social networks. Extensive research shows that implementing family
psychoeducation dramatically improves the lives of people diagnosed
with schizophrenia, as well as reducing family stress and strain. (http://mentalhealth.samhsa.gov/cmhs/communitysupport/toolkits/family)
The following summarizes
the events at Valeo Behavioral Health Care in Topeka, Kansas, which
became the first site in Kansas to implement evidence-based practice
family psychoeducation.
Since January of 2008,
staff from Valeo has been meeting regularly to plan and develop KPF.
Cara Weeks, Crystal Bearden, Chris Wills, Shirley Hudson, Linda
Edwards, Mike Fowler, and Glea Ashley make up the team of staff who
has diligently worked together with KU to develop KPF. Eric
Harkness and Tammy Broadbent of NAMI have also been a part of this
team in developing the program.
Engagement
and Joining:
In June of
2008, family practitioners started “joining” with consumers and
their family members. In these joining sessions, family
practitioners start partnering with the consumer and family to build
rapport, to convey empathy and hope, and to establish an alliance.
These sessions focus on the family’s and consumer’s experience with
mental illness, the consumer’s precipitating factors and prodormal
signs, and the identification and teaching of coping skills. The
family practitioners meet with the consumer and family for at least
three joining sessions to gather information for a “family support
plan”. This plan acts as a crisis plan for the practitioner, family
member, and consumer to refer to.
Educational Workshop:
After the
joining sessions were completed with six consumers and their family
members, the KPF team along with Valeo’s psychiatrist, Dr. Mohiudden,
presented a one day educational workshop for consumers and family
members in September of 2008. The curriculum covered psychobiology,
diagnosis, treatment and recovery, reactions to experiencing
psychosis as a family, relapse prevention, and family guidelines.
One family member’s response to the workshop was “…what a great
sharing of information and resources! The setting was so pleasant
and the format interesting and helpful. Actually, I would say the
material is life changing. The heartening thing is we get to
continue this group! I’m excited!”
Multifamily Groups:
The following
month, the six consumers and their family members, along with the
family practitioners, and the KU consultant, Sue Ellen Jayne, met
for the first multifamily group. During the first and second
multifamily groups the partnership building between the consumers,
family members, and professionals continues. Everyone is given the
opportunity to introduce themselves by talking about their hobbies
and interests, and the opportunity to talk about how mental illness
has affected their lives.
Problem Solving Process:
In November of
2008, the group met for their third multifamily group session. This
session began the problem solving process which will be the focus of
the multifamily groups. During the problem solving process,
everyone is given the opportunity to provide ideas on how to solve a
problem that someone in the group is dealing with. This process is
structured to include identifying the problem, defining the problem,
generating solutions, reviewing pros and cons, selecting a solution,
and developing specific plans to carry out the solution. The
consumer and family are asked to try the solution during the next
two weeks, and then to discuss the results at the next multifamily
group. The group will continue to meet twice a month for 9 months
and then once a month for however long the group determines.
Fidelity:
In January of
2009, KU completed a 6 month fidelity review to determine the
progress of implementation for the program. The results of this
show that Valeo’s dedication to working with consumers and family
members has been successful. The fidelity scale for family
psychoeducation outlines in detail the steps of implementation in
which Valeo has worked on to develop the program. Valeo scored the
highest that could be achieved at this stage of implementation with
a score of 62 out of 70. This is an increase from the baseline
score of 14.
Outcomes:
The following
information was gathered at the fidelity review from charts,
interviews with staff, consumers, and family members, and
observation:
·
Decrease in
crisis calls by a family member.
·
Increase in
utilization of mental health services instead of
hospitalization.
·
Increase in
knowledge about mental health, recovery, the mental health system
and NAMI.
·
The use of
the problem solving process outside of the multifamily groups.
·
Increase in
relationship building among staff, consumers, and family members.
·
Consistent
attendance and participation of consumers and family members from
the beginning of implementation to the present.
Valeo’s success as a pilot
project in partnering with consumers and family members is being
used as an example for other mental health centers that are in the
process of developing their own Kansas Partnership of Families
program.